Wednesday, May 26, 2010
Preparing for #2
We've signed up for a second set of 40 dives for Oliver in July. We're doing this in the middle of his new ABM therapies but I think they will compliment each other well. And I'll have help this time with family and friends so it shouldn't be too much harder even with both kids.
Thursday, November 26, 2009
Summary and Behavioral Notes - End of Session
Sleep - a 6 or 7 hour shift followed by an hour awake and another 2 hours of sleep - up by 6 - sometimes waking a time or two for a cuddle - can't remember how this compares- I'm not getting enough sleep =)
Eyes- I think they are crossing worse- it appears that he's working them harder- trying to do more
Hands- opening Right to drop toy, using left a little more, trying pincer grasp and when failing uses rake of hand with the remaining 3 fingers instead of all 5
Arms- I've been using the word "no" to get him to stop the ATNR left arm bend with a fit at night or with frustration as when he rolls - maybe he is becoming more aware because sometimes I say no and he stops it instead of me having to force it to stop
Legs - crossing terribly when walking, seem weaker, is this less high tone - a good thing in theory but makes walking harder - otherwise still kicking equally Hips- still seem more flexible and assisting more in rolling - all the way over a little easier - Also - legs kick when he's on a flat surface trying to roll- he learned this in our roll off the bed game and is translating it to a flat surface- I'm proud of that transfer
Eating- pretty solid - increasing, tolerating well - however on this last Saturday (the one before Thanksgiving) I began to notice reflux type problems starting and have increased a bit over the last few days. One morning he wouldn't/couldn't eat much although I'm very regular with his medicine for the reflux - otherwise is able to eat a lot of puffs and large bites of food
Awareness - there is this weird thing he's doing where he is getting upset when watching a particular scene in Elmo's world where he interprets it as something bad is happening to Mr. Noodle - there are 2 scenes to date (nov 25) where he's crying over something that is happening to mr noodle- one is where a kite takes him away and another is where he's a butterfly and a large net is trying to trap him -the kids narrating the scenes do act in mock-panic and he literally falls apart watching the scene and recovers as soon as it's over - I'm currently working to reassure him and making sure to be present for these scenes
Also- when his turn to get checked for his ears was over - even if the kid next to him (in my test case, another baby) is getting checked he doesn't get upset like he used to- and then I had the tecnichian pretend to check him and still he wasn't worried- I wasn't holding him down like usual for an ear check but it was interesting that he made that distinction
Crawl- more likely to get into crawl position and rock back and forth a little once I have his arms propping him up - not really making crawling motions like he has in the past but strengthening by being in that position
Verbal- same although I feel like there's something going on there - better babbling to the elmo dvd maybe and better noises, nothing that makes any more sense but somehow better
Mood- I am more able to leave him on the floor to run to the bathroom - he's becoming more relaxed about this situation - and his sense of humor is increasing in what all he finds funny and will entertain him
Eyes- I think they are crossing worse- it appears that he's working them harder- trying to do more
Hands- opening Right to drop toy, using left a little more, trying pincer grasp and when failing uses rake of hand with the remaining 3 fingers instead of all 5
Arms- I've been using the word "no" to get him to stop the ATNR left arm bend with a fit at night or with frustration as when he rolls - maybe he is becoming more aware because sometimes I say no and he stops it instead of me having to force it to stop
Legs - crossing terribly when walking, seem weaker, is this less high tone - a good thing in theory but makes walking harder - otherwise still kicking equally Hips- still seem more flexible and assisting more in rolling - all the way over a little easier - Also - legs kick when he's on a flat surface trying to roll- he learned this in our roll off the bed game and is translating it to a flat surface- I'm proud of that transfer
Eating- pretty solid - increasing, tolerating well - however on this last Saturday (the one before Thanksgiving) I began to notice reflux type problems starting and have increased a bit over the last few days. One morning he wouldn't/couldn't eat much although I'm very regular with his medicine for the reflux - otherwise is able to eat a lot of puffs and large bites of food
Awareness - there is this weird thing he's doing where he is getting upset when watching a particular scene in Elmo's world where he interprets it as something bad is happening to Mr. Noodle - there are 2 scenes to date (nov 25) where he's crying over something that is happening to mr noodle- one is where a kite takes him away and another is where he's a butterfly and a large net is trying to trap him -the kids narrating the scenes do act in mock-panic and he literally falls apart watching the scene and recovers as soon as it's over - I'm currently working to reassure him and making sure to be present for these scenes
Also- when his turn to get checked for his ears was over - even if the kid next to him (in my test case, another baby) is getting checked he doesn't get upset like he used to- and then I had the tecnichian pretend to check him and still he wasn't worried- I wasn't holding him down like usual for an ear check but it was interesting that he made that distinction
Crawl- more likely to get into crawl position and rock back and forth a little once I have his arms propping him up - not really making crawling motions like he has in the past but strengthening by being in that position
Verbal- same although I feel like there's something going on there - better babbling to the elmo dvd maybe and better noises, nothing that makes any more sense but somehow better
Mood- I am more able to leave him on the floor to run to the bathroom - he's becoming more relaxed about this situation - and his sense of humor is increasing in what all he finds funny and will entertain him
Tuesday, November 24, 2009
Day 20 - ALL DONE
I wrote "all done" to be funny- that's what we say to Oliver. When his accupuncturist (is that even a correct form of the word?) said it yesterday to him he was obviously happy that she was done messing with him. =)
So today I'm cleaning and he's watching Elmo. We had a little celebration/going away party for one of the technicians and we're going to exchange e-mail with other parents. I'm going to try to keep in touch with the woman whose 2 year old has CP but it's not that similar of a case overall. None of them are really. At least 2 other parents are planning on coming back already. The others are considering it. I'm considering it but that's not something I need to pay attention to at the moment.
I'll try to make note of the behavioral summary in the next day or so but I will also make a note of it at the 1 month, 2 month and 3 month post-treatment marks when we're supposed to see more.
So today I'm cleaning and he's watching Elmo. We had a little celebration/going away party for one of the technicians and we're going to exchange e-mail with other parents. I'm going to try to keep in touch with the woman whose 2 year old has CP but it's not that similar of a case overall. None of them are really. At least 2 other parents are planning on coming back already. The others are considering it. I'm considering it but that's not something I need to pay attention to at the moment.
I'll try to make note of the behavioral summary in the next day or so but I will also make a note of it at the 1 month, 2 month and 3 month post-treatment marks when we're supposed to see more.
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